How We Help
Fighting TB Around the Globe World TB Day 2008
 
Although tuberculosis (TB) is a curable disease, each year almost two million people die from TB and approximately nine million people newly develop the disease. Virtually all TB deaths occur in the developing world, primarily affecting young adults in their most productive years. Project HOPE began addressing tuberculosis in Kazakhstan in 1993, and currently supports the single largest and most comprehensive regional tuberculosis program in the Central Asian Republics (CAR). In addition, Project HOPE TB programs have been expanded to cover portions of China and Malawi. Project HOPE’s comprehensive approach to TB education focuses on proper laboratory diagnosis, effective treatment, continuous and uninterrupted drug supply, increasing public and patient knowledge about TB, working to build political support for TB control and of course, training of health care workers. Our TB programs in the Central Asian Republics have been documented to save close to  2,000 lives each year. Read some of our success stories.

Tajikistan

Zulfia receives counseling and support to help her deal with her understand her  husband's and daughter's TB treatment.
The best TB medicines and the most  well-trained medical professionals are not enough to rid the world of TB. Sometimes it takes individuals willing to stand up against social stigma and help others who might be suffering from this curable disease. Meet Zulfia, a mother and wife who lives in Tajikistan. Several years ago, Zulfia’s world was turned upside down when her husband, Takhir, was diagnosed with TB.

Takhir had been sick for a while, but as the sole breadwinner of his family, he had ignored his symptoms. “He was concerned that the cost of treatment  would reduce his income, and he would not be able to feed our children,"  Zulfia explained.

But one morning, his body finally gave out. “Takhir could not even get up and go to work,” Zulfia said. In a panic, Zulfia ran to the district doctor. That same day, Takhir was hospitalized. Takhir was treated in the hospital but the family was still responsible for providing him with food and clothes. Fortunately, because of the established TB program in Tajikistan, most of the medicines turned out to be free of charge and Takhir did not have to pay for his numerous laboratory tests. The most difficult part of the treatment was hiding the disease from his neighbors and relatives. In Tajikistan, TB is stigmatized and the families with TB patients are subjected to condemnation.

Thanks to well-trained medical professional, Takhir improved. He came back home and finished his treatment under the direct observation of a district doctor.

But a few months later, Zulfia’s family faced another challenge when her 15-year-old daughter, Dilya, developed a persistent cough. The district doctor suspected Dilya also had TB. For Zulfia, this diagnosis was even more upsetting than her husband’s. If the other villagers found out that Dilya contracted TB, she risked losing the chance to be married. “Nobody would want to marry a young girl with a history of TB illness,” Zulfia said. So she made a decision to hide her daughter’s sickness from everybody and instead,  try to cure her daughter with all the available medicines they had at home.

At night, Dilya’s health worsened and by the morning she had bleeding from her lungs. Eventually she was hospitalized. Dilya spent two months in the hospital and finished her TB treatment at home under supervision. She recovered from TB and Zulfia’s perspective of the disease changed.

“When I saw my child dying, I understood that I could lose her forever! Let nobody marry her! I need her!”  Zulfia said. “I am so grateful to doctors because she survived. She’s become merry and cheerful again.”

And  Zulfia no longer keeps silent about TB. “Now, I know that TB is a curable disease. The brightest examples are my husband and my daughter. I often visit neighbors and relatives. If I see someone ill or coughing I advise to go to see the doctor,” she said.

Zulfia emphasizes the importance of seeking medical attention early, and tries to comfort those she educates with personal experience. “I always say that it is better to get treatment early. I let them know that all TB drugs are free of charge and most importantly is that you should not be confused or scared,” she said. “People believe me because they know about my sufferings.”

Turkmenistan
 
Project HOPE continues to train health care workers in Turkmenistan in the best practices for diagnosing and treating curable TB.
Sometimes people don’t know what to do. They think they have nowhere to go. A helping hand can change all that. Meet Amanguliyev.  Amanguliyev was referred to clinic to be checked for possible TB. His TB diagnosis was confirmed and he was immediately prescribed an out-patient treatment regimen to cure his illness. But Amanguliyev was depressed and did not care about his own health. He refused to stick to his treatment regimen and sometimes he would vanish and not even the local police could summon him back for regular treatment.

“I have been in despair,” Amanguliyev told his doctor. “I do not see a way out of my situation, and I feel useless for anyone.” Amanguliyev told his doctor he was just “waiting for the end.”

But Amanguliyev's doctors did not give up.He was admitted to a TB Hospital of Akhal Velayat in the settlement of Dushak. What happened in the hospital turned his whole life around. Amanguliyev met a girl who also was undergoing treatment for TB. She told him that she used to think the same way as he- that TB was incurable. She also confided that she was once ashamed to confess to anyone that she had TB, because people would turn away from her if they knew that she had been sick. At first, she said she did not want to be treated for  TB because she did not believe in success. But her family doctor persuaded her to be treated and convinced her she could once again have a healthy life. She agreed to follow the treatment protocol and told Amanguliyev she was feeling much better.

Amanguliyev took another look at his own situation. The new hope he had been given by his new friend helped him to become disciplined and to adhere to the treatment regimen. Now Amanguliyev is unrecognizable to his old self. By sticking to his treatment regimen, Amanguliyev was cured of TB, but more importantly, his despair with his life's situation has disappeared. He is back engaging in life and working a good job.

Amanguliyev credits his new lease on life to properly performed treatment and caring individual attention from well-trained medical workers who were there for the patient facing a daunting challenge.

Malawi
Making sure needed medications are available and convenient are vital to successful TB treatment. Read this mother's story.

In Malawi, a mother helping her daughter comply with her TB treatment traveled a long distance to the Nambazo Health Centre to refill her daughter’s TB drug supply. Thanks to trained health care workers, who understood the  importance of keeping TB medicines well-stocked at the clinic, this mother's visit was not in vain. She collected the medication she needed for her daughter, and took it home so her daughter could continue uninterrupted treatment for her curable disease.
 
While this mother’s story is simple, it highlights the importance of keeping TB medications in stock at all time. TB is curable, but only when patients follow strict treatment protocol. If this mother would have arrived at the clinic to find the staff out of medications, she may have thought twice about making the long trip  the next time her daughter needed her TB medication. Instead this mother went back very happy and was able to provide her daughter with a continuous uninterrupted supply of TB medication, which is not only good for her daughter’s recovery, but also essential for preventing the development of drug resistant TB in the community.
 
 

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