Gaucher Disease patients in Egypt have extremely limited access to costly enzyme replacement therapy. In the absence of enzyme therapy, they have no means of alleviating the debilitating and painful symptoms of the disease. Project HOPE provides patients with humanitarian access to effective treatment and increasing awareness surrounding the disease among physicians and families nationwide.
Project HOPE also works to increase patient access to trained diabetes educators through the International Diabetes Educator E-Learning Program (IDEEL). An online diabetes educator course helps reach large numbers of qualified health professionals, including health care workers in Egypt.
Project HOPE’s work in Egypt began in 1975 when the Mrs. Gihan El Sadaat, the wife of the former President Sadaat, requested assistance with professional expertise for the Al Wafaa Wal Ama comprehensive rehabilitation center. Medical training initiatives continued throughout the 1980s and 1990s including the development of a Master’s Degree in Nursing program at Cairo University, a biomedical engineering training program and nursing diploma curriculum development and emergency medical training programs.
In 1999, HOPE helped implement the Gaucher Disease Initiative in partnership with Genzyme Corporation to relieve suffering and prevent the untimely death of people affected by the disease. The program provides both treatment to patients and training to medical professionals. Other initiatives have included an Oncology Fellowship program with St. Jude’s Children’s Research Hospital, an American Heart Association Certification Program, a Family Physician Training Program, the development of a Community Nurses Leadership Program and a Diabetes Home Care Education Program.
In 1999, Project HOPE began to implement the Gaucher Disease Initiative in Egypt in partnership with Genzyme Corporation, to relieve the suffering and prevent the untimely death of people affected by the rare genetic disease.